To enhance the development of our Network activities, IPRO ESRD Network of the New England works with committed and informed patients who advise and assist in promoting quality of care for their fellow patients- at both the State and National level. These patients will serve as Subject Matter Experts (SMEs) and will assist the Networks in developing patient-centered projects mandated by the Centers of Medicare and Medicaid Services (CMS).Our commitment to patient and family engagement is centered on our goal of improving quality and safety of care.

“There is a consensus among sources that patient and family engagement involves including “the perspectives of patients and families directly into the planning, delivery and evaluation of healthcare, thereby improving the quality and safety of the care provided.” Although patient and family engagement may be implemented differently in different healthcare settings, all activities should support the patient’s values, preferences, and expressed needs; “provide clear, high quality information and education for the patient and family; include coordinated and integrated care and involvement of family members and friends, as appropriate” and incorporate “the core concepts of dignity and respect, information sharing, active patient participation in their care, and collaboration.”1

There are two direct methods the Network utilizes to foster patient and family engagement at the Network level. One method is through the development of a Patient Advisory Committee. The other method is the involvement of patient or care partners subject matter experts in the development and review of the Network quality improvement activities.

PATIENT ADVISORY COMMITTEE:

What is the Patient Advisory Committee (PAC)?

The Patient Advisory Committee (PAC) assists in identifying and addressing barriers to obtaining quality health care from the perspective of ESRD beneficiaries. The PAC supports Network activities by assisting with the development of educational materials for patients and providing feedback on the effectiveness of beneficiary-related activities. It also assists in outreach to other beneficiaries and care partners to obtain their perspective.

How can I get involved in the PAC?

View our Patient Advisory Flyer

WHAT IS A SUBJECT MATTER EXPERT (SME)?

A patient or care partner who is interested in working to improve the quality of care for fellow patients and assist the Network in the development of patient centered projects.

What is the role of an SME?

SME’s will attend Network webinars and assist with the review and development of quality improvement educational materials for patients and their care partners.

How can I become a Subject Matter Expert (SME)?

Visit our Patient Subject Matter Expert (SME) page for more information

1 Institute for Patient-and Family-Centered Care. (no date) Advancing the Practice of Patient-and Family-Centered Care in Hospitals-How to Get Started. Retrieved December 30, 2014, from Institute for Patient-and Family-Centered Care: http://www.ipfcc.org/pdf/getting_started.pdf
2 Committee on Quality of Health Care in America. Institute of Medicine. (2001). Crossing the quality chasm: a new health system for the 21st century (1st edition). Washington, DC: National Academies Press.

For questions or assistance, please contact us:

Brittney Jackson, LMSW, MBA
Patient Services Director
203-285-1213
bjackson@nw1.esrd.net

Merari Rosario, MHA
Community Outreach Coordinator
203-285-1223
 mrosario@nw1.esrd.net